NUTRITION

~ Bolus Feeds

~ Many SMA families follow the Amino Acid Diet, you can find much information on the AA diet page. Another diet option a family uses is Holistic Health.
You can also ask some other SMA parents about both diets on their facebook support page HERE.
OR you can contact Melissa Brown, Holistic Health Coach.

~ Dr Swoboda: Nutrition

~ Dr Swoboda: General Nutrition Guidlines
   for SMA Children

~ Dr Swoboda: Guidelines for Gastrostomy Tube
   Feeding for Infants with Neuromuscular Disease

~ Dr Swoboda:  Nutritional Acute Illness Guidelines

~ Dr Swoboda: Nutrition Information & Guidlines

Please contact our clinical coordinators for questions regarding SMA diet. Please contact our offices at: 801-585-9717. Nutritional care guidelines for children with SMA and other neuromuscular disorders are available on
Dr. Swoboda's website

Peri-Operative Guidlines for SMA

"Prolonged fasting or inadequate caloric intake can negatively impact recovery by enhancing fatigue and making it more difficult for them to wean off ventilatory support. Under the most ideal circumstances, pre-operative fasting should be limited to no more than 6 hours in SMA type I subjects or weak neuromuscular infants, and to no more than 8 hours in SMA type II or type III
subjects or other neuromuscular patients"